GUEST BLOG “My New Normals”

“I HATE”

When I write something, 99% of the time it is positive. Well as you could probably tell by the title, this post is going to fall in the negative 1%. Lately I have been frustrated and disgusted by a number of things so I decided to summarize them and vent a little.

I hate tripping over nothing.
I hate that I’m sick.
I hate how MS makes me feel.

I hate that I’m getting worse.
I hate that stupid handicapped placard.
I hate when people say, “But you don’t look sick.”

I hate that I can’t drive anymore.
I hate using canes, walkers, and scooters.
I hate how expensive medicine is.

I hate how hard it is to be declared disabled by Social Security.
I hate using adult diapers.
I hate that I can’t….

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PASSING STORM

The response to my last post was sooooo overwhelming! I’m still answering your comments! Thanks so much for reaching out and I think on a certain level it helped all involved. As far as MS goes sometimes it feels as if I can only take so much before I pop! And pop is what I did last week. You got to see my inner most vulnerable fears and thoughts laid out right before your eyes.

Though my rant didn’t literally change my circumstance, it made me a less tense person. It allowed me to press the release button. Most of the time I put on a smile to make others feel comfortable while I slowly shrink a little inside. This probably in the long run is damaging for us both. I need to consider being more sincere with those close to me. I probably share more with you guys than I do with those around me. It’s safe and convenient to write it here. Nobody’s watching. And as I mentioned before I secretly  

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MY FINAL FOUR

The Men’s Final Four, a college basketball championship game, was held in New Orleans this year. There were many activities that surrounded the final game which actually is this coming Monday. By the time this post is released the game will have been played and won (I predict Kentucky). I just wanted to drop this little note now while my experience is fresh.

Typically, I don’t mind being seen in public, so I don’t shy away from these sorts of activities. I don’t particularly like being pushed in my wheelchair among a lot of people walking around me, but I think getting out is good. They say social interaction is a fundamental human requirement, so out I went. As I was in the midst of kids, families and fans enjoying the sights and games I just tried to appreciate the moment despite how I really felt. To be honest, I did meet some sports celebrities that were pretty nice.

As we rolled around I saw…

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