There are also 12 patient stories including several who were treated at Stanford in 2009 as well as the story of one of the patients treated by Dr Zamboni in 2006. Reviewed by the leading researchers in this field including Dr Zamboni with a foreword by E. Mark Haacke PhD, this book is a must have for people wanting to understand this model.

AUTHOR MARIE RHODES

Marie RHodes is a registered nurse who has had MS since 1991. In 2009 she was the second person treated in the US for CCSVI in an observational study at Stanford. She wrote the well researched and highly acclaimed book “CCSVI as the Cause of Multiple Sclerosis: The Science behind the Controversial Theory” published by McFarland in 2011. Marie is also on the science advisory board of the Annette Funicello Research Fund for Neurological Diseases and patient advisory board of the CCSVI Alliance. She conbtributes 10% of her proceeds to CCSVI research.
Note: Marie Rhodes is an RN and patient/advocate for MS who is active in the online community. 10% of author proceeds goes to CCSVI Alliance, a 501(3)(c) charity for CCSVI research where she is a volunteer patient board member.

Book Reviews:

Reviews by Medical Professionals

From the Foreword by E. Mark Haacke PhD:

“This book is an overview of the history of the role of veins in multiple sclerosis, the current status of research related to CCSVI, the politics that have ensconced it during the last year, patient testimonials, and current directions in imaging and treatment. It will be a valuable resource for medical professionals and patients seeking information to understand the new paradigm.”

From F. Alfons Schelling MD, Author of “Multiple Sclerosis: the Image and Its Message”:

“Congratulations!  This book gives an exceptionally well-informed, critically balanced update on the state of the art in CCSVI-research. Whether medical expert or MS patient, I can’t imagine anyone being interested in MS and CCSVI who would not greatly benefit from it. Struggling to discover what MS, be it vein-conditioned or not, ultimately is, here I learned how a soberly thinking CCSVI patient thinks and feels – and what ought to be done about it. I would be delighted if I could buy a personally signed copy of your book. ….”

Reviews by Non-Medical Readers:

“This book is good on so many levels. It is a very thorough picture. If you think you know everything already, you might be surprised. This book is just stuffed with information, but don’t worry, if you can’t quite digest it all, there are plain language summaries at the end of each chapter. If you are new and want to learn more, I don’t think there is a better place.  I have two copies, one for my own reference and one I share so others can really see how information packed this is. Thank you so much Marie, for all you put into this!” B Carrigan

“This well written book helps doctors and patients understand the important connection of venous insufficiency and Multiple Sclerosis. An indispensable resource for anyone living with MS.” R Zeller

“This Book was the reason my Dr. got on board with CCSVI. I lent him my copy, he started researching and contacting Dr.s that where referenced. I had CCSVI done yesterday! THANKS Marie!!!!” T.Campbell 

Read More on CCSVIbook.com

“CCSVI BEEN THERE DONE THAT”

“~~MSLOL Radio- CCSVI, been there done that!~~ (Read this in your best sensational news voice)

You’ve heard about the Liberation procedure? You’ve heard about the miraculous response.

But do you know anyone whose has been there done that! (You may resume your normal reading voice!)

Join us for a conversation with a number of people who have had the Chronic Cerebro-Spinal Venous Insufficiency Surgery. We will meet those who swear by it and those who don’t.

It’s going to be straight up candid conversation? No talk about the contentious stuff or efforts to coerce. Just a personal conversation with those who have a CCSVI tale to tell.”

The Importance of Assistive Clothing

Tips on How to Look and Feel Good

Looking good can lift your spirits and make you feel more attractive. But how do you boost self-esteem when fatigue, limited mobility, poor eyesight, and your budget are in the way?

Here are some ideas and resources:

Clothing

Have someone take new measurements for the way you stand or sit now. Hemlines, pant legs, garment backs, and shirt sleeves might all need adjustments to make your old favorites workable and comfortable or your new purchases fit properly. Many catalog companies and department stores do alterations. So do many dry cleaners.

Shortening a jacket a few inches can make a big difference if you’re sitting most of the time.
If fastening buttons has become a problem, have them sewn onto the outside of shirts or dresses, and have Velcro strips put inside to hold the garment shut.
-National Multiple Sclerosis Society

About SlipOn SwimSUITS:

If you find getting in and out of a swimsuit a real struggle, you’ll love the new SlipOn™ Swimsuit. At last, here is a swimsuit that is truly easy to put on in minutes and even quicker and easier to take off, no matter what your size, age or mobility. The smart cut, adjustable pleating, crossover design with bra shelf and four way stretch fabric ensure a stylish yet comfortable fit for women of all shapes and sizes.

The suit is already proving popular with any woman who wants to look good and spend time enjoying the benefits of aquatic exercise rather than being stuck in the changing room battling to get into their swimsuit. Pregnant women, plus size women, those with limited mobility, older women and even children all find SlipOn answers their dreams of an attractive yet practical suit that simply slips on and off, so you can slip into the water whenever you want.

READ MORE on SlipOn Swimwear

  how the idea came about

In 1997, the idea for the SlipOn™ Swimsuit came about as I was waiting after a Parkinsons’ aquatic therapy class had ended. One gentleman said, “I have to wait up to 30 minutes for my wife to take off her swimsuit and get dressed again.” I had not thought this a handicap for people with special needs. At the time, I was selling a tie-on swimsuit and I sent her one to try. She could not use the suit because she had neither strength nor flexibility in her hands. I hired a swimsuit designer and we worked for 8 months looking at different concepts to solve this problem.

Finally we came up with the concept READ MORE on About Us

Any Questions About Social Security Disability?

TUNE in at 7pm
(Thursday May 3rd, 2012)

Liset Angela Ramirez-Garcia Interviews
Karl Kazmierczak, Esq.
New Jersey Social Security Disability Lawyer

“When you become disabled and can no longer work, you must adapt physically, emotionally, and financially to the changes in your life. The last thing you need at this challenging time is to struggle with a confusing federal bureaucracy like the Social Security Administration.”

-New Jersey Social Security Disabilty Lawyers

Host LISET ANGELA RAMIREZ-GARCIA

Founder and Director of

Restore Hope in Our Community Trust

“Why I am here and what I intend to do…..

The daily struggles with a diagnoses of Multiple Sclerosis which started as just inconvenient until Jan. 2011, when I was hospitalized for three weeks and came home in a wheelchair and unable to walk. The struggles we went through the following months were tremendous. We took our anger and turned it around to create a much needed Community Center to help educate, support and lend a hand to those in our area facing the same struggles we had; Restore Hope In Our Community Trust for us by us.”

~Liset Angela Ramirez- Garcia

Restore Hope Community Trust on Facebook

The Positive Experience

Radio Host Joseph “JOEYGIGGLES” Aquilino

MS WELLNESS MONDAYS

Mondays will be dedicated to bringing awareness to MS and encouragement and resourses to those who are challenged with it.

We will be working hand in hand with The National Multiple Sclerosis Society.

“MS Wellness Mondays” will include experts who can talk about topics like nutrition and other wellness topics, in addition to fitness.

Now, You Can Host or Post your Show!!

Simply submit the Premise of your show for consideration.

Email: Host@MSstationRadio.com or

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